Daisy was once a vibrant and active young person who enjoyed spending time with friends, going to school, and taking part in everyday activities that made her happy. Her life changed suddenly after she became very ill and was diagnosed with a rare form of epilepsy. She does not fully understand her diagnosis, but she knows she is very sick, and that has been very hard for her and her family. Since then, Daisy has experienced a major change in her abilities and now needs full-time help with even her basic daily needs. The loss of her independence has been very difficult for everyone who cares about her. Her caregivers have shown constant love and dedication. Her mother had to stop working to care for her full-time, which has created financial strain for the family. Daisy is currently enrolled in a clinical trial in Texas in hopes of improving her condition, which requires frequent travel and ongoing out-of-pocket costs that continue to be a challenge.