Frankie Gilman, 16 years old, OR | 1 DAY WAITING

Wish submitted by:

Frankie is a radiant beam of light whose beauty is matched only by her incredible inner strength. Living with Rett Syndrome, medically refractory seizures, and a coronary artery abnormality, she faces profound medical challenges every single day, yet she meets them with extraordinary patience, tolerance, and grace. Frankie works tirelessly at everything she does, demonstrating a quiet, unwavering resilience that inspires everyone around her. Overflowing with love and a spirit that refuses to be defined by her diagnosis, she is a true hero and a deeply cherished gift to all who are fortunate enough to know her.

Frankie's medical needs are complex, and keeping her entire care team on the same page is essential, but not always easy. The Eko Core 500 would change that. This device would give Frankie's parents the ability to capture and send critical health information directly to her specialists and primary care provider, ensuring that everyone involved in her care has access to the same up to date information. For a family managing the day to day realities of a complex medical condition, this kind of tool can make all the difference. It would help Frankie's parents feel more confident and supported at home, knowing they have a direct way to flag concerns and share important updates with her doctors. At the same time, it would help her care team stay coordinated and informed, allowing them to catch changes early and make timely decisions about her care. Ultimately, the Eko Core 500 would strengthen the partnership between Frankie's family and her medical providers, helping ensure nothing falls through the cracks.