Lilly, 16 years old, OR

Wish submitted by:

Lilly is a radiant light whose beauty is matched only by her extraordinary strength. Living with Rett Syndrome and medically refractory seizures, her journey took a challenging turn following a 71-day hospital stay due to RSV, which led to a new tracheostomy. Despite facing profound medical obstacles every day, Lilly approaches each challenge with remarkable patience, grace, and unwavering resilience. Overflowing with love and defined far more by her vibrant spirit than any diagnosis, she continues to inspire everyone around her as a true hero and a deeply cherished gift to all.

To keep our superstar Lilly safe and moving freely with her portable pulse oximeter, continuous SpO2 monitoring is essential. Because she wears her sensor nearly 24/7, insurance's well-intentioned allowance of just 4 Masimo RD SET disposable adhesive sensors a month simply doesn't cover what she actually needs. Right now, her parents have to carefully tape and re-tape worn-out sensors just to stretch them out, which can sometimes lead to tricky, inaccurate readings. A box of 20 sensors would give Lilly the reliable supply she needs each month, keeping her monitor secure, comfortable, and accurate, and letting Lilly, her parents, and her caregivers feel confident she's safe every single day.