Lilly, 16 years old, OR

Wish submitted by:

Treehouse Therapies

Lilly is a radiant light whose beauty is matched only by her extraordinary strength. Living with Rett Syndrome and medically refractory seizures, her journey took a challenging turn following a 71-day hospital stay due to RSV, which led to a new tracheostomy. Despite facing profound medical obstacles every day, Lilly approaches each challenge with remarkable patience, grace, and unwavering resilience. Overflowing with love and defined far more by her vibrant spirit than any diagnosis, she continues to inspire everyone around her as a true hero and a deeply cherished gift to all.

With Lilli's new tracheostomy and ventilator, she now requires significantly more medical supplies than before. Trach care is a daily necessity, including cleaning the skin around the stoma, thoroughly rinsing equipment, and inflating the tube cuff to keep everything functioning safely. Unfortunately, insurance doesn't cover enough of certain supplies to meet these daily needs, currently providing only 12 units of 250ml solution per month, which falls far short of what's actually required to keep up with her care routine. This gift would provide two 6-packs of 1000ml bottles, a significant increase in volume compared to what insurance currently covers. With more solution readily available, Lilli's family can maintain her daily trach care routine without constantly worrying about running out mid-month, ensuring she consistently gets the thorough cleaning and safe equipment maintenance she needs to stay healthy and comfortable.